Girl with 'mermaid syndrome' dies at 10

PORTLAND (AP) - Shiloh Pepin, a girl who was born with fused legs, a rare condition often called "mermaid syndrome," and gained a wide following on the Internet and U.S. television, has died. She was 10.

Gregory Rec/Portland Press Herald

Ap Photo/Gregory Rec/Portland Press Herald

In this Dec. 20, 2007 photo, Shiloh Pepin laughs with her parents while sitting on a counter in the family's Kennebunkport, Maine home. Pepin, who was born with fused legs, a rare condition often called "mermaid syndrome," died Friday, Oct. 23, 2009. She was 10.

Doctors had predicted she would at most only survive for days after her birth. The girl died at Maine Medical Center on Friday afternoon, hospital spokesman John Lamb said. She had been hospitalized in critical condition for nearly a week.

Being born with "mermaid syndrome," also known as sirenomelia, meant that the Kennebunkport girl had only one partially working kidney, no lower colon or genital organs and legs fused from the waist down.

Some children who have survived sirenomelia have had surgery to separate their legs, but Shiloh did not because blood vessels crossing from side to side in her circulatory system would have been severed. She had received two kidney transplants, the last one in 2007.

Her story was featured recently on "The Oprah Winfrey Show" and other national television programs.

Earlier this month, her mother, Leslie Pepin, said her daughter came down with a cold that quickly turned to pneumonia. Shiloh was rushed to Maine Medical Center on Oct. 10 and was placed on antibiotics and a ventilator.

For a while, Leslie Pepin said, things were looking up. "She's a tough little thing," she said of her daughter earlier this week.

Shiloh was a fifth-grader at Kennebunkport Consolidated School. "She was such a shining personality in that building," said Maureen King, chairwoman of the board of the regional school district. Counselors will be available next week to talk to students.

Through the television shows, news articles, Facebook and other Web sites, Shiloh inspired many.

"I live in Iowa. I have cerebral palsy. I love your video," 12-year-old Lydia Dawley wrote to Shiloh on Facebook. "You have a great personality I wish you lived close so we could be friends and hang out. You opened my eyes because you are so brave."

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Comments

 's picture

I just watched her story on

I just watched her story on tv a week or so ago and was amazed. She was such a strong little girl. I am so sorry for her family and all who knew her.

 's picture

my heartfelt sympathy to her

my heartfelt sympathy to her family! heaven has a beautiful little angel!

 's picture

My deepest, sincerest

My deepest, sincerest sympathy. Shiloh is an inspiration to us all. xoxox

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