Dear Sun Spots: Isabella Monroe Walden was born to Michael Marcus and Fame Nicole Walden Sept. 27, 2002, in Springfield, Illinois. At 2-weeks-old, she was diagnosed with a genetic disorder called oculocutaneous albinism. This affects the hair, skin and in most cases the eyes. Those born with it have little or no eye pigmentation or very light skin as is Isabella’s case.

The American Legion in Topsham kindly picked up the cost of tinting our vehicle windows to protect our 10-month-old from the sun. But as our daughter gets older we will need to provide her with vision aids to help her read and see in school, at home and elsewhere. Where can we go to get help?
Fame Walden, Topsham.

Answer:
Sun Spots was able to locate The National Organization for Albinism and Hypopigmentation, which may be able to help you. You can reach them at P.O. Box 959, East Hampstead, NH 03826-0959, at 800-473-2310 or online at www.albinism.org.

According to their Web site, there are catalog companies that sell some low-vision aids, such as sunglasses, magnifiers and hand-held telescopes and may cost less than buying from a low vision specialist. The American Federation for the Blind also maintains a directory of U.S. low vision clinics. You can reach them at 800-AFB-LIND or by visiting www.afb.org for the list. State Vocational Rehabilitation offices or Blind Services Divisions can also help locate low vision clinics and may even be able to help find sources to help pay for low-vision aids.

In addition to NOAH, there are several organizations for blind and visually impaired persons and/or their families. The major ones are:

Council of Citizens with Low Vision International.

National Association for Parents of Children with Visual Impairments, P.O. Box 317, Watertown, MA 02471, e-mail [email protected], (800)562-6265 or (617) 972-7441.

American Council of the Blind, which offers: toll-free information and referral on all aspects of blindness; scholarship assistance to blind/visually impaired post-secondary students; and public education and awareness training. You can reach them at 1155 15th St., NW, Suite 1004 Washington, DC 20005, at (202) 467-5081 or at (800) 424-8666.

National Association for Visually Handicapped, 22 West 21st Street, 6th Floor New York, NY 10010 (212) 889-3141 or online at www.navh.org.

Dear Sun Spots: Regarding the Aug. 2 Sun Spots column: “You Can’t Get There From Here.” It was my Web page that you referred to but you didn’t give the complete Web page address. Without it you can’t reach my Web page. Readers interested should log onto www.qs1.net/n1svb. Once the visitor reaches my home page they should go down the page to the links and click on the link with “DX in Maine.” This will take them to the page with the sign and poem. Any visitors please feel free to check out other links. The page is being built with ham radio operators in mind, but everybody is welcome.

This is my first attempt at building a Web page and I am still working on it. Please bear with me as it is not yet complete. – Earle Gilmore, Greene.

This column is for you, our readers. It is for your questions and comments. There are only two rules: You must write to the column and sign your name (we won’t use it if you ask us not to). Letters will not be returned or answered by mail, and telephone calls will not be accepted. Your letters will appear as quickly as space allows. Address them to Sun Spots, P.O. Box 4400, Lewiston, ME 04243-4400. Inquiries can also be posted at www.sunjournal.com in the Inform Us section under Press Release.


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