The Trump administration is threatening two life-saving programs: the National Institutes of Health (NIH) and Medicaid. This is a current and future medical emergency. But for NIH, our adult daughter with cystic fibrosis (CF) and many Mainers with diseases common and uncommon might not be alive today.

In Maine, 49% of children and 37% of adults living with CF rely on MaineCare. Many people with chronic illnesses face periods, short or long, in which illness limits employment and insurance options. As CF is a progressive disease, postponed treatment can mean exacerbations, irreversible decline and costly hospitalizations.

Cystic fibrosis is a genetic disease that causes mucus lung blockages. In 1955, children with CF rarely lived through elementary school. The NIH played a vital role in changing this story from discovery of the CF gene to the development of new CF therapies. Our daughter is doing well in her mid-30s and the mother of three children, ages 1 to 5. As we celebrate, we recognize that not all people with CF are eligible for highly effective therapies. The work is not done.

The NIH and Medicaid remain essential programs. We are pleased that Sen. Collins recently signaled that she will fight drastic NIH and Medicaid reductions. She needs to be joined by other national representatives and a highly vocal public. We ask those reading this letter to write or call federal decision makers. The vital work done in these programs must not be reduced through acts of fictitious efficiency.

Ron Bailyn and Patty Morris
Cape Elizabeth